Epilepsy Resource Center

Epilepsy Resource Center

Athanasios Gaitatzis, Anthony L. Johnson, David W. Chadwick, Simon D. Shorvon, Josemir W. Epilepsy carries a risk of premature mortality, but little is known about life expectancy in people with the condition. A cohort of patients with definite epilepsy has been followed for nearly 15 years and there have been deaths. These data have been used to estimate life expectancy of people in this cohort by employing a parametric survival model based on the Weibull distribution.

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By signing up, you agree to our Privacy Policy and Terms. Eight years ago, video producer Kate Milliken was 35, single, and living in Manhattan—”a deadly combination,” she jokes. On the day she was anticipating a third date with a guy she was really beginning to like, she noticed that the fatigue and tingling in her hands that had been nagging her for a week had spiraled into something much worse. By the time I got to the doctor, I couldn’t keep my balance.

A neurologist immediately ordered a magnetic resonance imaging MRI scan, which revealed a spinal cord lesion in her neck.

Kevin* is a likable guy who lives with his wife in New Jersey. If you know him or figure out his real name, please don’t post it here — in order to respect Kevin’s.

Here young people talk about their experiences of dating, relationships and sex, and how having epilepsy affected these areas of life. Dating Young people’s experiences of dating and relationships were very positive on the whole. Most we spoke with said that having epilepsy hadn’t had a negative impact on their experiences of dating or going out with people. Quite a few people said that, since their diagnosis, they had become more cautious or careful about who they ask out or develop a relationship with.

Many preferred to get to know people as friends first, before getting involved more seriously. This way, people didn’t need to feel awkward about when and how to tell a new boyfriend or girlfriend about epilepsy because they were already aware of it. A few people said they felt less confident about dating now than before their diagnosis. Some also talked about how, because of frequent seizures and lack of social networks, it was difficult to meet new people.

One woman said epilepsy had knocked her confidence so much she didn’t want to ask anyone out because she feared being rejected. Many people felt that, if their boyfriend or girlfriend couldn’t cope with their epilepsy, then they wouldn’t be the right person for them anyway. One man said that epilepsy was a part of his life so any girlfriend would just have to ‘take it or leave it’.

A couple of people who hadn’t yet dated much, said they were a bit worried how epilepsy might affect their future relationships or finding a partner.

Loving Someone With Epilepsy

Most people with epilepsy can have full social, sexual, and family lives. Read about issues surrounding sex and reproduction for those with epilepsy. Often it is more issues of self-esteem, than medical issues, that interfere with this.

friends can—sports, dating, hanging out, working, Epilepsy may be part of your life, but it doesn’t define someone with a genetic susceptibility for epilepsy.

He knew something was wrong while I was in the hospital but thought it was the after effects of the seizure. I was still acting strange a week after being discharged, but I provided no explanation. You have to tell me what it is. He was stunned, to say the least. Then I looked at him and asked whose dog that was. Needless to say, this was one of them. Apparently we went on two vacations where we drove over 3, miles each time.

I remember nothing from either of these trips.

A model for focal seizure onset, propagation, evolution, and progression

PAT: So I don’t need you to introduce yourself. That’s usually the thing we do, but we’re not telling people who you are. That’s — yeah, that’s my name. Not suspicious at all. JAD: It’s not his real name.

Focal seizures have been recognized for more than years, with descriptions dating back to ancient Mesopotamia (Worthington, ).

To view our blog post from last year on dating and epilepsy, please click here. To find out how to be an effective partner to someone with epilepsy, check out our tips below:. Tip 1 — Help them remember medications: People with epilepsy may use treatments, such as medication and may have specific times they need to take their medication. You can do things like reminding them to take their medications, asking them if they have packed their medications when going on vacation, etc.

You can also do the same with any other treatment options they may be utilizing, such as CBD, the ketogenic diet, etc. Tip 2 — Help them keep track of appointments: People with epilepsy have regular appointments with doctors to ensure that everything is going well with their epilepsy. You can help them keep track of their appointments by using a calendar, reminders, etc.

Tip 3 — Be seizure aware: Knowing what type of seizures your partner typically experiences is important as well as knowing what to do in the event of a seizure.

She said: Emily and Dan on dating and epilepsy

Grand mal seizures, or generalized tonic-clonic seizures, are seizures that involve muscle contractions, muscle rigidity, and loss of consciousness. These seizures result from abnormal electrical activity in the brain. Grand mal seizures affect the entire body, and may happen just once or multiple times as in the case of epilepsy.

Seizures are a physical symptom, but having epilepsy can mean far more than the physical impact of seizures, for the person with epilepsy, and.

Epilepsy is a disorder of the brain that triggers recurrent seizures. A person is diagnosed with epilepsy when they have had two or more seizures that are not caused by another medical condition such as a high fever or low blood sugar. Zayan was thirteen years old when he had his first seizure in his school computer lab in Dhaka, Bangladesh. Following the incident, Zayan took a long break from school to seek medical care.

He was diagnosed with idiopathic epilepsy, which is caused by an unknown factor that may be genetic. Epilepsy can be caused by different conditions, including stroke, brain tumor, brain infection, or traumatic brain injury. As my friendship with Zayan grew, I became passionate about understanding how epilepsy impacted his daily life. One morning I witnessed a seizure suddenly take over his body and it was one of the most frightening moments we shared together.

That experience made learning seizure first aid a priority for me so that I could take care of Zayan if and when he had another seizure. If you know someone living with epilepsy, you might have to care for them during or after a seizure. The goal of seizure first aid is to keep the person safe until the seizure stops on its own. Stay with the person until the seizure ends and he or she is fully awake. After it ends, help the person sit in a safe place.

Once they are alert and able to communicate, tell them what happened in very simple terms.

Saints, sinners, seizures: dating with Functional Neurological Disorder

Bertha C. Ekeh, Udeme E. Background and Aim. Epilepsy remains a stigmatized disease especially in Sub-Saharan Africa. Lack of information and illiteracy has been blamed as the cause of the stigmatization.

Imagine looking at your husband and saying, “I’m sorry, I have no idea who you are.” Yes, that happened. We’d been married almost fiv.

When I was 19, I started blacking out. Then, my short-term memory started suffering. I was in college, and the last thing I needed was my knowledge evaporating. The diagnosis explained my suffering short-term memory and my recent struggle to learn new skills. The seizures explained it all. So I laugh because there have been hilarious moments that get me through. My college roommates meant well, but they always seemed a little nervous about my epilepsy.

6 Times My Blackout Seizures Caused Hilarious Chaos

Professional Reference articles are designed for health professionals to use. You may find the Epilepsy and Seizures article more useful, or one of our other health articles. Children and adults who have had a suspected first seizure should be referred urgently within 14 days to an epilepsy specialist children do not routinely require referral following a febrile convulsion. Treatment is usually not recommended until after a second epileptic seizure but may be indicated after a first seizure if the individual has a neurological deficit, brain imaging shows a structural abnormality, the electroencephalograph EEG shows unequivocal epileptic activity or the individual or their family considers the risk of having a further seizure unacceptable [ 1 ].

A detailed history should be taken to exclude previous myoclonic, absence or focal seizures as patients with undiagnosed epilepsy may present with a single generalised tonic-clonic seizure [ 2 ]. Provoking factors include [ 3 ] :.

Erectile dysfunction is also a common problem for men with epilepsy. may have had a more difficult time with dating than their friends without seizures.

Share your best tips you’ve picked up throughout your life, and learn from others! ULPT: Dating someone with epilepsy and having a fight? This happened to my then friends mom. I had a fight with her and later that night she had a seziure from her medication being mixed with her alcohol ism. She didn’t remember the fight afterwards, it was the weirdest thing to get over the next time I saw her.

I was totally skeptical, but honestly the next time I saw her, she didn’t say anything or even mention anything regarding the fight, which was substantial. If she was acting then she deserves an academy award. If you’re lucky, they’ll just beat themselves and not remember it. You can just walk away. Added plus: person you were fighting with will now not want to start a fight for fear of inducing another seizure.

Things to Never Do When Someone Tells You They Have Epilepsy

Talk to your child’s doctor about what activities your child can do and encourage your child to participate. As your child grows, help him become more independent. Seizures occur most frequently during the first few years of life , during a time when the brain is going through its most dramatic growth and changes. However, diagnosing seizures in infants can be difficult, as they cannot communicate what they are feeling after a seizure or during medical tests.

For someone with epilepsy the recommended amount should be less – around date and time of seizures; if you were asleep or awake; description or type of.

He was diagnosed with epilepsy about a year ago, along with other health problems. This is his second seizure, the first he was driving a car, luckily slowly. My mother practically begged me to leave him when he was first diagnosed, but love ruled. I was nervous he would hit me out of confusion, but more nervous he would bleed out and die. He needs me now more than ever. So, I have resolved to be there for him as a girlfriend, until he is no longer directly dealing with the aftermath of the incident.

But I need to break up with him for my own sake. I care about him deeply, but I am too young to introduce this much trauma into my life.

First Seizure

Improving life after brain injury Need to talk? For people living with the long-term effects of brain injury, the idea of dating can be a daunting and challenging prospect. Brain injury survivor Kathryn found dating and intimacy very challenging following her haemorrhage but explains that with time, and after many emotional highs and lows, she again felt able to meet people. He heard me collapse and go into seizure. After a number of operations, Kathryn slowly began to recover.

However, she was left with a host of issues including partial vision, speech and walking problems, cognitive impairment, acute fatigue, anxiety and low-self esteem.

Here are the things you should know when dating someone with epilepsy: Be epilepsy aware -People with epilepsy may not feel comfortable.

C ompared with the general population, patients with newly diagnosed symptomatic epilepsy have reduced life expectancy, according to an investigation published in the November issue of Epilepsia. Patients with newly diagnosed idiopathic or cryptogenic epilepsy, however, have a normal or prolonged life expectancy. The year of diagnosis and the type of epilepsy appear to influence life expectancy.

Many studies have suggested increased mortality among patients with epilepsy. Two previous investigations have reported the more specific measure of life expectancy in epilepsy, but both had methodologic weaknesses and were prone to substantial bias, said Claudia A. Granbichler and colleagues examined data for all patients visiting the epilepsy outpatient clinic of Innsbruck Medical University in Austria to calculate their life expectancy.

They included 1, adults who presented between January 1, , and December 31, , in their analysis. Patient data were recorded and updated continuously over time. They defined symptomatic epilepsy as the result of a known or suspected CNS disorder. Epilepsies not preceded by another disorder were considered idiopathic. The authors defined epilepsies of unknown cause as cryptogenic. The difference in life expectancy between patients with epilepsy and the general population depended on the type of epilepsy and the time of diagnosis.

Between and , patients diagnosed with symptomatic epilepsy had a substantially greater reduction in life expectancy — 7. Regardless of the type of epilepsy, patients diagnosed in subsequent decades had progressively smaller reductions in life expectancy, relative to the general population, or prolonged life expectancy.

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